“Demanding and even tiring”

I’ve been swamped lately with other professional obligations, and Intentional Catholic has had to take a back seat. When I came downstairs this morning, I knew I needed to dig back into Fratelli Tutti, but I was not prepared for the section I was reading to speak so powerfully to the event coming up next Sunday.

March 21st is World Down Syndrome Day, chosen because Down syndrome, or Trisomy 21, is THREE copies of the TWENTY-FIRST chromosome.

For fourteen years now, Down syndrome advocacy has been a driving force in my life. I was not prepared to be a special needs mom. Having grown up in the pro-life movement, the moment when I had to confront my own distinctly un-pro-life reaction to the news was a pretty bruising collision with the mirror.

The point Pope Francis makes in this excerpt really hit home after a decade and a half of mighty struggles on behalf of our daughter. “A demanding and even tiring process,” he calls it, and let me tell you—you have no idea just HOW demanding and tiring.

But he’s right: this demanding and tiring process DOES contribute to the formation of a conscience capable of acknowledging each individual as unique and unrepeatable. I would not be where I am today, in my growth as a Christian, had God not placed this precious gift in my womb, forcing me to look in the mirror and recognize a host of inconsistencies between what I claimed to believe and how those beliefs conflicted with other deeply-held convictions about how the world was “supposed” to work.

I will never be done grappling with my profound failures around these issues, but I am grateful for the gift of my child, who to this day stretches me beyond what I think I am capable of.

For the next week, leading up to World Down Syndrome Day, I will share here some of the reflections I’ve written or presented over the years as I wrestled with all this.

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